This is the Privacy Policy of Endo45 Limited NZBN. 9429050344680 a registered New Zealand business. Referred to in this document as, “Endo45”, “we”, “our”, or “us”.
Endo45 understands your concerns about privacy and your interest in knowing how your information is used and shared, and so we have created this Privacy Policy (the “Privacy Policy”) to provide you with more information on these topics.
We regret that if there are one or more points below with which you are not happy, your only recourse is to leave our website and App immediately.
This privacy policy has been compiled to better serve those who are concerned with how their 'Personally Identifiable Information' (PII) is being used online. PII, as described in US privacy law and information security, is information that can be used on its own or with other information to identify, contact, or locate a single person, or to identify an individual in context. Please read our privacy policy carefully to get a clear understanding of how we collect, use, protect or otherwise handle your Personally Identifiable Information in accordance with our website and Application.
This Privacy Policy describes the practices, policies and procedures for our website www.endo45.co.nz (the ‘website) and Application (Endo45) referred to as the ‘App’. Endo45 aims to inform you about how we collect and handle any information that we collect from you, or that you provide to us. It covers both information that could identify you (“personal information”) and information that could not.
Sensitive information is defined in the Privacy Act to include information or opinion about such things as an individual's racial or ethnic origin, political opinions, membership of a political association, religious or philosophical beliefs, membership of a trade union or other professional body, criminal record or health information.
Sensitive information will be used by us only:
We are extremely concerned to protect your privacy and confidentiality. We understand that all users of our website and App are quite rightly concerned to know that their data will not be used for any purpose unintended by them and will not accidentally fall into the hands of a third party. Our policy is both specific and strict. It complies with New Zealand law and with the laws of all jurisdictions of which we are aware. If you think our policy falls short of your expectations or that we are failing to abide by our policy, do please tell us at [email protected]
Except as set out below, we do not share, or sell, or disclose to a third party, any personally identifiable information collected on our App or our website.
By visiting this Website, you are accepting the practices, policies, and procedures described in this Privacy Policy, and you are further indicating that you agree to be bound by the terms of this Privacy Policy. If you do not agree to the terms of this Privacy Policy, please do not visit our website, download the App or use any of the links on this Website.
Endo45 is committed to ensuring that the information you provide to us is secure. In order to prevent unauthorised access or disclosure, we have put in place suitable physical, electronic and managerial procedures to safeguard and secure information and protect it from misuse, interference, loss and unauthorised access, modification and disclosure.
The transmission and exchange of information is carried out at your own risk. We cannot guarantee the security of any information that you transmit to us, or receive from us. Although we take measures to safeguard against unauthorised disclosures of information, we cannot assure you that personal information that we collect will not be disclosed in a manner that is inconsistent with this Privacy Policy.
We may update this Privacy Policy from time to time, so please check this Privacy Policy periodically for changes.
Here is a list of the information we collect from you, either through our website or App or because you give it to us in some other way, and why it is necessary to collect it:
This includes basic identification and contact information, such as your name (nickname) and contact details (email address) and also includes all information given to us in the course of your business and ours, such as information you give us in your capacity as our user/client. We undertake to preserve the confidentiality of the information and of the terms of our relationship. It is not used for any other purpose. We expect you to reciprocate this policy.
This information is used:
Email Newsletter: If you opt to receive our newsletter, we will ask you to provide certain personally identifying information, including your email address, first and last name. You may unsubscribe from these emails at any time by using the link provided in the footer of all such emails.
Contact Us: The Website provides “contact us” links for questions visitors may have about the work we do, our App and our Website. If you contact us through any of these contact forms, we will collect your email address and any other personal information that you provide to us. We will use the information you provide to contact you and to respond to any requests and/or questions.
We keep information, which forms part of our business record for a minimum of seven years. That is because we may need it in some way to support a claim or defence in court. That is also the period within which our tax collecting authorities may demand to know it.
We also collect certain non-personal information (data in a form that does not support a direct association with any specific person or individual) by automated means when you visit the Website and download the App. Much of this information is collected through the use of third-party tracking services, which includes Apple, website analytics, and Google Analytics etc. The information collected may include usage information, such as the numbers and frequency of users to the App Store, Google PlayConsole, Website, App, pages visited, web browsing histories, online purchases and searches, social networking activities and similar data. When gathered, this data, if used, is used in the aggregate, and not in a manner that is intended to identify you personally. This type of aggregate information may be shared with third parties at any time. In addition to the third-party tracking services mentioned above, we also collect this information through various other means, including "cookies” and IP addresses as further explained below. Cookies are dealt with separately see below.
IP Addresses - When you visit and interact with the Website, we or third parties with whom we have contracted to provide services for us may collect Internet Protocol addresses (called an "IP Address"), as well as browser type, Internet service provider (ISP), referring/exit pages, platform type, date/time stamp, and page navigation. An IP Address is a unique identifier number that certain electronic devices use to identify and to communicate with each other on the Internet; your Internet Service Provider automatically assigns an IP Address to the computer that you are using. We gather this information to track Website visitor movement in the aggregate and to gather broad demographic information for aggregate use. Our goal in gathering this information is to learn how our customers and the public are using our Website. We may use this information to enhance our Website or for other lawful purposes.
Do Not Track - Every time your computer sends or receives information over the Web, the request begins with some short pieces of information called “headers.” These headers include information like what browser you are using, what language your computer is set to, and other details. The Do Not Track technology provides individual users with the ability to include a simple, machine-readable header indicating that they don't want to be tracked, and sends a signal to Web sites' visited requesting that the website disable either its tracking or cross-site user tracking of an individual user. Currently, various browsers – including Internet Explorer, Google Chrome, Firefox, Opera and Safari – offer a “do not track” option. Presently, there is no consensus on how Do Not Track should be interpreted, and no common or accepted industry standard for implementing. Consequently, please note that Endo45’s Website does not currently respond to browsers' Do Not Track signals, and as such your activities will be tracked, regardless of whether you have opted to enable the Do Not Track option offered by your browser.
When we obtain information from you specifically to enable you to buy a service offered on our website or App by some other person, we assume that in giving us your information, you are also giving us permission to pass it to the relevant person like Apple and Google (Android) to procure the item or software.
This information is recognised by our servers and the pages that you visit are recorded. We shall not under any circumstances, divulge your e-mail address to any person who is not an employee or contractor of ours and who does not need to know, either generally or specifically. This information is used:
Information you send to us by feedback, posting to a forum or blog or in your advertisement, is stored on our servers. We do not specifically use that information except to allow it to be read, but you will see in our terms and conditions that we reserve a right to use it in any way we decide including promotion of the App and website.
You may freely visit our Website anonymously and without being required to provide us with any personal information. However, certain requests and features do require that you provide us with some personally identifying information as more particularly described below. Personal information is data that can be used to identify or contact you. Please do not send confidential information to us directly through this Website, or by email to any of the contact email addresses listed on this Website.
We may use software embedded in our website (such as JavaScript) to collect information about pages you view and how you have reached them, what you do when you visit a page, the length of time you remain on the page, and how we perform in providing content to you. We do not presently associate such information with an identifiable person.
This information is never taken by us either through our website or App download or otherwise. At the point of subscription or payment, you are transferred to a secure page on the AppStore or Google Console or if through the website a reputable payment service provider like PayPal in the future. That page may be dressed in our “livery”, but it is not controlled by us. Our staff and contractors never have access to it.
To grow the offering and further support people suffering with endometriosis, Endo45 offers for people, companies or other entities to support our cause. So we can continue to reach more sufferers. In time this will be affiliated with a not-for-profit arm of the business that will help people who can’t afford support for the disease directly.
Endo45 respects the privacy of all donors. We believe in safeguarding personal information and ensuring that donor privacy is protected. Your name, address, and any other personal data you provide will be used only by Endo45 to keep you informed of our activities including our programs, special events, and funding needs. If at any time you choose not to receive these communications, you may contact Endo45 and we will gladly remove your name from our mailing list.
Endo45 may publish donors in various Endo45 event programs throughout the year and on our website. We deeply appreciate all donations and equally respect all donor requests to remain anonymous.
If you make a donation via the “Support Endo45” button, you will be given the Endo45 bank account details and can direct transfer money to Endo45.
In the future if you make a donation via the “Support Endo45” button you will be asked to provide certain personally identifying information, such as your name and address, as well as your credit card billing information, in order to process the donation. The credit card information that you provide at the time of donation is used only to process your donation and will not be stored or used for any other purpose. However, if you opt to make a recurring donation, your credit card information will be stored and used for the purpose of processing your recurring donation.
You will be transferred to a secure page with a reputable payment service provider like PayPal etc. That page may be dressed in our “livery”, but it is not controlled by us. Our staff and contractors never have access to it.
Many companies offer certification and an icon or other small graphic to prove to website visitors that the website is safe. Some certify to a high level of safety. Others are more concerned to take our money than to provide a useful service. We do not handle information about your credit card so do not subscribe to any such service. Our services are managed by Google and Apple Pay stores.
To assist in combating fraud, we share information with credit reference agencies, so far as it relates to clients or customers who instruct their credit card issuer to cancel payment to us without having first completed the transaction or provided an acceptable reason to us and given us the opportunity to refund their money.
Third parties may advertise on our website. In doing so, those parties, their agents or other companies working for them may use technology that automatically collects your IP address when they send an advertisement that appears on our website to your browser. They may also use other technology such as cookies or JavaScript to personalise the content of, and to measure the performance of their adverts. We do not have control over these technologies or the data that these parties obtain.
Accordingly, this privacy policy does not cover the information practices of these third parties. You will need to see their respective privacy policies to understand how they will manage your personal data.
We may also provide links to a variety of third-party social media sites and/or websites – such as YouTube, Twitter, Facebook, and others - as a service to you, and in order to provide you
Please note that we have no affiliation with any of these other parties and/or websites, and cannot control and are not responsible for the information collection, use, and disclosure practices of such third parties; we encourage you to review and understand their privacy practices and policies, if any, before using providing any personally identifying information to them or initiating any financial transactions. We are not responsible for the content or information of these websites, or any other use of the linked website.
Our website may from time to time publish feedback and other information received from users and as such is a publishing medium in that anyone may register and then publish information about himself or some other person. We do not moderate or control what is posted. If you complain about any of the content on our website, we shall investigate your complaint. If we feel, it may be justified, we shall remove it while we investigate.
Free speech is a fundamental right, so we have to make a judgment as to whose right will be obstructed: yours, or that of the person who posted the content which offends you. If we think, your complaint is vexatious or without any basis, we may remove it and we shall not correspond with you about it.
Although we do not disclose your personal information to any third party (except as set out in this notice), we do receive data which is indirectly made up from your personal information, from software services such as Google and Apple Analytics and others. No such information is identifiable to you.
If you provide information to us with a view to it being read, copied, downloaded, or used by other people, we accept no responsibility for what that third party may do with it. It is up to you to satisfy yourself about the privacy level of every person who might see your information. If it is available to the World, neither we nor you have any control whatsoever as to how it is used.
Cookies are small text files that are placed on your computer's hard drive through your web browser when you visit any website. They are widely used to make websites work, or work more efficiently, as well as to provide information to the owners of the website.
Like all other users of cookies, we may request the return of information from your computer when your browser requests a web page from our server. Cookies enable our web server to identify you to us, and to track your actions and the pages you visit while you use our website and App. The cookies we use may last for a single visit to our website (they are deleted from your computer when you close your browser), or may remain on your computer until you delete them or until a defined period of time has passed.
Although your browser software enables you to disable cookies, we recommend that you allow the use of cookies in order to take advantage of the features of our website that rely on their use. If you prevent their use, you will not be able to use all the functionality of our website. Here are the ways we use cookies:
When you call our helpline, we collect Calling Line Identification (CLI) information. We use this information to help improve the efficiency and effectiveness of our help line.
When you send a message, we collect the data you have given to us in that message in order to obtain confirmation that you are entitled to receive the information and to provide to you the information you need. We record your request and our reply in order to increase the efficiency of our business / organisation.
If we reply to your request for support via email as requested by you then your email address and personal information sent will be recorded in our mail server.
When we receive a complaint, we record all the information you have given to us. We use that information to resolve your complaint. If your complaint reasonably requires us to contact some other person, we may decide to give to that other person some of the information contained in your complaint. We do this as infrequently as possible, but it is a matter for our sole discretion as to whether we do give information, and if we do, what that information is.
We may also compile statistics showing information obtained from this source to assess the level of service we provide, but not in a way that could identify you or any other person.
If you send us information in connection with a job application, we may keep it for up to three years in case we decide to contact you at a later date.
If we employ you, we collect information about you and your work from time to time throughout the period of your employment. This information will be used only for purposes directly relevant to your employment. After your employment has ended, we will keep your file for seven years before destroying or deleting it according to New Zealand tax law requirements.
With your permission we pass your email address and name to selected associates whom we consider may provide services or products you would find useful. You may opt out of this service at any time by instructing us at www.Endo45.co.nz/unsubscribe.
We may use re-marketing from time to time. This involves Google or some other supplier placing a tag or marker on our website in order to be able to serve to you an advert for our products / services when you visit some other website.
This is information given to us by you in your capacity as an affiliate of us or a customer or client of ours or affiliate to our App. Such information is retained for business use only. We undertake to preserve the confidentiality of the information and of the terms of our relationship. It is not used for any other purpose. We expect any affiliate to agree to reciprocate this policy. As an exception to this, we have the right to disclose your first name and URL of your affiliate connection to other affiliates and to any other person or organisation, on and off the website. The reason is solely to enable us to mention winners and others whose performance as an affiliate is in some way outstanding.
We do not market to children, nor do we sell products or services for purchase by children. We do sell products and services for end use by children as children also suffer from endometriosis, but strictly for purchase by adults. If you are under 18, you may use our website and App only with consent from a parent or guardian and additional requirements prevail in the EU, Switzerland and United Kingdom as per below.
Endometriosis has been found in children as young as 13 years of age and as such the App and website have been designed to help all sufferers of the disease. However due to the medical nature of Endo45 all users under the age of 18 require parental or guardian approval to use the App and website.
The Website and App does not intentionally or knowingly collect, use, or disclose personally identifiable information about visitors to our Website or download the App that are less than 18 years of age. If a child under the age of 18 submits information to us through any part of the Website or App and Endo45 becomes aware that the user submitting the information is under the age of 18, the information provided will not be stored and will be deleted (including the account) as soon as it is discovered and not used for any purpose. If you are the parent or guardian of a child under 18 years of age and believe that they have disclosed personally identifiable information to us, please contact us at [email protected] and be sure to include in your message, the same user name and password and/or email address that you believe your child submitted.
Please note, if you reside in the European Economic Area, Switzerland And UK, users must be 16 years of age or older, and any registration by, use of or access to the Website by anyone under 16 is unauthorized, as further clarified below.
EUROPEAN UNION AREA, SWITZERLAND AND UNITED KINGDOM USERS
The following provisions apply only to users residing in the European Union Area (“EEA”), Switzerland and the UK.
Please note, in May of 2018, a new data privacy law known as the EU General Data Protection Regulation (“GDPR”) went into effect. Pursuant to GDPR, we are required to provide those residing in the EEA, Switzerland and the United Kingdom (hereinafter, the “EU Users”) additional information and rights related to the “Personal Data” we collect about them. We summarize such information and rights below.
PURPOSE FOR INFORMATION COLLECTION
As noted in this Privacy Policy, you may visit our Website without being required to provide us with any Personal Data. However, should you decide to provide such information or download our App, the information we collect will be used to meet your requests or to provide you with the applicable information or service requested, and as further described herein.
LEGAL GROUNDS FOR PROCESSING PERSONAL DATA
Endo45 will process personal data that we receive from EU Users on the ground that it is in our legitimate interest for the effective administration of the Website and App, to fulfil and/or address your requests, or to provide the functionalities and features as further described herein.
YOUR INFORMATION AND YOUR CHOICES; WITHDRAWAL OF CONSENT
GDPR provides EU Users with additional rights in respect to the Personal Data we hold about you, including the right
COPPA (Children Online Privacy Protection Act)
When it comes to the collection of personal information from children under the age of 13 years old, the Children's Online Privacy Protection Act (COPPA) puts parents in control. The Federal Trade Commission, United States' consumer protection agency, enforces the COPPA Rule, which spells out what operators of websites and online services must do to protect children's privacy and safety online.
Endo45 does not specifically market to children under the age of 18 years old and endometriosis is not known to commonly occur in children under the age of 13 years.
We collect data about all users of and visitors to the App and website regardless of age, and we anticipate that some of those users and visitors will be children.
Such child users and visitors will inevitably visit other parts of the website or App and will be subject to whatever on-site marketing they find, wherever they visit.
We are subject to the law like everyone else. We may be required to give information to legal authorities if they so request or if they have the proper authorisation such as a search warrant or court order.
This privacy policy has been compiled so as to comply with the law of every jurisdiction in which we aim to do business. If you think it fails to satisfy the law of your country, we would like to hear from you, but ultimately it is your choice as to whether you wish to use our website or App.
At any time you may review or update the personally identifiable information that we hold about you. Upon appropriate formal request we will update or amend your Personal Data, but we reserve the right to use any information previously obtained to verify your identity or take other actions that we believe are appropriate and lawful. You may access, correct, or request deletion of your Personal Data – or request that we stop any processing of your Personal Data - by contacting us at the address listed above. We will respond to your request within a reasonable timeframe.
Please note we may need to retain certain information for record keeping purposes, and there may also be residual information that will remain within our databases and other records, which will not be removed from such locations. Additionally, there may be circumstances in which we are not legally required to comply with your request because of the laws in your jurisdiction or because of exemptions provided in data protection legislation in general, and GDPR in particular. Finally, please note that we are not responsible for removing or deleting information from the databases of third parties (such as service providers) with whom we have shared information about you, but we will make the request on your behalf for such removal/deletion.
If you wish us to remove personally identifiable information from our website, you may contact us at [email protected]. To better safeguard your information, we will also take reasonable steps to verify your identity before granting access or making corrections to your information.
Our processing of your personal data is done with your written consent made by agreeing to the Terms of Service and this Privacy Policy upon utilizing peer support services, subscription to our App, make a purchase, sign up for our newsletter, respond to a survey or marketing communication, surf the website, or use certain other site features. By giving us your consent, you also have the right to withdraw your consent at any time to prevent future processing of your personal data.
Subject Access Requests
As a data subject, you are entitled to make a formal request for information we hold about you. We must provide you with a copy of this information, the reasons it is being processed and whether it will be given to any other organizations or people provided that you make this request in writing by emailing us.
Data Erasure and Rectification
You have the right to erasure (also known as the ‘right to be forgotten’). This means that you have the right to request us to erase personal data we hold about you and that we should erase such data without undue delay (allow for reasonable processing time).
You also benefit from the right to rectify or update inaccurate personal data we hold which relates to you (also known as the “right to rectification”).
Our website is hosted in New Zealand. We also use outsourced services in countries outside New Zealand from time to time in other aspects of our business. Specifically, our technical centre is based in India. Accordingly data obtained within New Zealand may be “processed” outside New Zealand and data obtained in any other country may be processed within or outside that country.
We do not represent or warrant that the Website or App, or any part thereof, is appropriate or available for use in any particular geographic location. If you choose to access our Website, you do so on your own initiative and at your own risk and are responsible for complying with all local laws, rules, and regulations applicable in your jurisdiction. Please note that the Website and App is hosted in New Zealand and is governed by New Zealand law. If you are visiting the Website from outside New Zealand, please be aware that your information will be transferred to, stored and processed in New Zealand and possibly India where our support teams are located, some of our databases are hosted in the United States of America. The data protection and other laws of New Zealand and other countries might not be as comprehensive as those in your country. By using the Website, you consent to your information being transferred to our facilities and to the facilities of those third parties with whom we share it as described in this Privacy Policy.
The Fair Information Practices Principles form the backbone of privacy law in the United States and the concepts they include have played a significant role in the development of data protection laws around the globe.
In order to be in line with Fair Information Practices we will take the following responsive action, should a data breach occur:
The CAN-SPAM Act is a law that sets the rules for commercial email, establishes requirements for commercial messages, gives recipients the right to have emails stopped from being sent to them.
We collect your email address in order to:
To be in accordance with CANSPAM, we agree to the following:
If at any time you would like to unsubscribe from receiving future emails, please click here or follow the instructions at the bottom of each email and we will promptly remove you from ALL correspondence, excluding invoices which are required by New Zealand Tax laws.
Note: We use services like: SurveyMonkey, MailChimp and others as our marketing automation platform. By subscribing to our email list, you acknowledge that the information you provide will be transferred to these services for processing in accordance with MailChimp Privacy Policy and Terms.
This Privacy Policy is effective as of 14 November 2023
If you have any question regarding the privacy policy, please contact us through the contact page.